Friday, June 25, 2010

Small Rant



Don't worry, this really is for no one but me. And its old news at that. Its supposed to be therapeutic I guess. So in all seriousness, pay no attention to me if you don't like seemingly pointless rants. Its really about my Thyroid. **soft yell heard in the distance...."boring"** sigh...Its true.

Many people who know me, know that I had Thyroid cancer when I was 15 and 16. I feel like there are pros and cons to the fact that I was that young. It was good because I don't think I understood the full weight of what that meant, so I was protected from being very emotionally distraught by the fact that I had cancer. Of course when I heard the news I was shocked, and my Mom and I cried all the way home from the drs office. But I became used to the idea after a while, and even though it came back again, requiring a third surgery just a few months later, i was upset, but came to terms very well. Something that I don't think I would be able to do if it were at this time in my life. I also gained a very strong base of faith in the Lord, and in the power of prayer and the Priesthood, at such a perfect age. For that I truly am grateful.

The "small rant" that I am referring to, is the fact that I feel that things could have gone better if I had different drs, more knowledge on the condition and type of cancer I had, and better resources and support related to thyroid issues. Looking back, it felt like I was the only one in the whole world that had this. I wasn't quite the internet savvy person, and I don't think there even was a google at that point. If I had the knowledge I have now, things could have been quite different.



For example, my Parathyroids were "accidentally" removed during the thyroidectomy, which they said "sometimes happens." However I only found this out after I came home from the hospital and had pretty much every muscle in my entire body contracting and spasming. PS, remember your heart? yeah. That's a muscle. So that was scary to feel my heart pulling in my chest, and again, here is where prayer came in, and calmed my body down enough to get to the ER. NOW I hear that they ALWAYS give the thyroidectomy patients calcium and Vitamin D right away just in case they parathyroid glands are damaged or destroyed. I have also since found out that if they are removed, they can be found through biopsy, and re-implanted in your arm and will still work. I was never told this.

Also, after the surgery, the standard procedure at the time was to go off Thyroid meds for several weeks, so I could have a Radioactive Iodine treatment and Body scan. Basically that means I was a dangerous walking glowstick (seriously though, I couldn't be near small children and pregnant ladies, and had to flush twice and eat with disposable dinnerware. But I digress...) So because I was off meds for so long, I became puffy, pasty, weak, tired and sick, and had teachers and friends asking what on earth was wrong with me. NOW I have found out that they have something called THYROGEN, which is an injection to replace the meds during that time so your body doesn't have to go without. Would have been nice at the time.

Also, I still have quite the scar, although it has gone down quite a bit. For a while my friends called it the "space-age" necklace. I even had a number of people commenting on it. Some of my favorites have been..."Did you try to kill yourself!?", and "Your necklace is giving you a rash!", and the best one, "You have lipstick on your neck." Oh people. So funny. Anyway, mine was very thick and red for a long time, but now people who have the same surgery, have smaller fainter scars within a few months, than mine is 13 years later.

I also have bought and read SO many books on Thyroid issues, and read blogs and newsletters about the like, and while many are good and insightful, most are contradictory. I read one that says take your thyroid meds at night only, and the next one says a study claims morning is the only way to go. Another says weight gain is not a byproduct, and another that says it absolutely is. One tells me to take coral calcium, the other says coral calcium is the worst you could take. And then I have drs. that say very confusing and contradictory things but they all tell me that "they know best."

Whats a girl to do? Well I am convinced I just need to stop complaining and keep praying. And thats all I can do. I realize that it could be WAYYYYY worse, and complaining is not going to change or help a thing. I just had to "vent" a bit. I've never really said this , but I feel like I would be a very different person if it weren't for this cancer. I mean that I was affected positively and negatively. So I am grateful I had the opportunity to grow and learn to lean on my Heavenly Father. (Which i am still doing.)

One last thought. You would think after 13 years, I would remember to take my 15+ pills every day right? *sheepishly* Yeeeaahhh. Not so much. I'm what we call "my worst enemy." I've tried the notes on the mirrors and windows, and alarm clocks, and pills in the purse, in pill boxes everywhere, and on my pillow at night, but i just can't seem to be consistent. That's what I need most. Just the ability to remember those little buggers. hmmph.

Well, I'm off to go take my pills. I really, truly hope no one stayed to this point. Except maybe one person. (Hi Mom!) It really was a pointless rant, I just had to get it off my back. Next one will be uplifting, promise.

Sunday, June 20, 2010

The many faces of....

My Dad! Larry Hartley,
Born Aug 9th Nineteen-fmehty-shmumpthing.
(date changed to protect the innocent)
WHO IS MY DAD???
Well, a lot of things:

He is Canadian!....
(and a goofy one at that)


He is a Brother.....(and a young scrawny one here )


A life long athlete....
(finishing the St.George Marathon about 4 or 5 years ago)


A Musician....
(a mean guitar player and singer with a "Smooth-a-butta" voice)
{pictured with his band in the 80's "Roller"}

A loving husband....



The avid sports fan... (as denoted by the Kings hockey arena behind us)


The doer of Man-deeds.....
(packing my little shquata car for my first year of college away from home)


The loving caretaker of children...
(taking good care of me during my surgeries in H.S.)

And Best of all...The greatest, most loving Father in the world!
(at the MTC before my mission)


I love you so much Dad
I am so grateful for everything you do and sacrifice for our family
You have honored your priesthood,
been there for me when I needed you most,
given me love and happiness,
and been a friend when I need you.
Thank you for being you,
HAPPY FATHERS DAY!
Love, your Daughter
Jer
(ps. I love you more)



Friday, June 18, 2010

Sometimes I feel like I live in the future...

...I guess I do. This is one of those things that reminds me I live in a very cool time. Where innovation can be found everywhere. Eric Whitacre, composer/conductor, has created a virtual choir. He videotaped himself conducting, then asked singers to record themselves singing their parts and send it on to him. Then, he merged their voices and videos electronically. The end result is this amazing recording- 185 singers and it sounds amazing. Incidentally, I sang many of Eric Whitacre's songs in High School, and especially love this one. Enjoy!~


Sunday, June 6, 2010

Garage Saleing!

Got this beauty at a garage sale! Brand spankin' new, and I think its so cute. It was marked at $25, but talked them down to $15, and so glad I did. I have been needing new luggage, most of all a wheeling carry on. So Yay! Hoping to go again next week!




Wednesday, June 2, 2010

Flowers, Fondue, Fun, Friends, Family, and Fotos!


The last week in May I went to California again...for a "work conference." I had a 2 day conference at the Anaheim Convention Center, but took about 10 days to hang out with my friends and family since my work was paying for the flight. (last year was the interpreter cruise, this year was a little more low key.) I did get to stay a couple nights in the Marriott adjacent to the convention center, and had a friend drive down for the conference too so she got to take advantage of the free hotel too. It the conference was ok, but the first day was a little disapointing, since I expected more from the National Interpreter Conference. The second day redeemed itself though, and we decided we liked the Deaf presenters a whole lot better than the others. Our favorite was a 4 hour Mime workshop. So fun! Least favorite was the "Interpreting for the LGBTQI community" workshop. Not so much because of the content, because I learned a few good things, but it was just super boring, and after 4 hours I wanted to hang myself.

Before the conference my Mom and I went to the Carlsbad Flower Festival, which was random but really quite fun! It was a perfect day and it was beautiful. We got some good (and silly) shots too.

Also hung out with my girl Emily, we had a fun homemade fondue lunch! It was quite fun, and super delicious!

Then randomly a few days later, after the conference my friend Rebecca (aka Frank) and I went to The Melting Pot, also fondue! We had a $20 off certificate, but it was still crazy expensive. Worth it though~ yummmers~!

Alright, now on to the "fotos"! Lots of them...
ps (I'm too lazy to add photo titles/comments, so deal. I'm sure you can figure it out.) :)